Monday, June 3, 2013

Lloyd in Limbo

The Lloyd Newsletter has been in a state of limbo.  It has been for a long time.  When I am unwell it seems to make a lot more sense; it serves as a way to pass the word to those who care about me.  When I am doing well I sometimes feel like I’m just talking about myself.  I’m not asking for a thumbs-up, I’m simply explaining that I feel like a braying ass when it seems as though I have no important information to provide. 

It would be easy to only write when things are bad (and I have been incredibly well treated and downright lucky).  In my years so far things haven’t been bad very often, so that would be the easiest thing to do.  But… this sight gets a lot of hits.  From people all over the world.  I have no idea who they are.  I can only imagine that they are new to this miserable condition (or have a loved one or friend) and have no idea what they are getting into.  We certainly didn’t.  People regularly ask to forward my blog to someone they know who has been newly diagnosed.  And to see that I’m still here- living and loving life -how can I simply disappear? They will think I died!  I suppose I feel the same way about this as I do my life:  I’m certainly not just going to leave!

So what to do?  Ten minutes of thought has produced the following: no more e-mail distribution.  That will make me feel like less of an ass.  Anyone who wants to know what is happening with me can look me up anytime they like on this website, which is http://www.thelloydnewsletter.blogspot.com/.  I’ll post a link on Facebook to say when there is a new one, but otherwise just check in whenever.  I get an MRI every 2 months and I’ll try to be more on-time with writing about those.  Incidentally, my last was on May 2 and Dr. G only came in at the end to say ‘hi’ after a totally no-change scan.

Agh...this has been troubling me, and I finally feel better.  I’ll end it with something I wrote very quickly above:
I suppose I feel the same way about this as I do my life:
I’m certainly not just going to leave!

Love, -Kristina (&Mark)
Uncle Mark swinging his nephew "into the sky" on our family farm.


1 comment:

Anonymous said...

Glad to hear you are doing well. As always, we still miss you at the NFB. If you come to convention this year, don't be a stranger.
Have a good summer,
Anna (in the library) :)