Lloyd Can't Read Update

At my EEG on Friday my technician recognized me immediately; he was the same I had several years ago! That always feels good. The EEG is 70% attaching/removing sticky cords to your head while chatting and 30% lying still trying to sleep. My results were analyzed and sent to Dr. R on Monday, and I received a call late Monday night.

I had several seizures during the test, without knowing it, and so the mystery is solved. Dr. R was not the least bit rattled by my catalog of things I can't do right now (which I LOVE about him), but went straight to work thinking up what drug to add to my list to get me under control. If anyone wants a job writing new drug names, surely there is a market for that. My new drug sounds like Wombat. Almost every drug I take has a well-known faux name among it's users (Dope-O-Max, anyone?).

Hopefully this issue is solved. At the end of the month I see Dr. G for a follow up to make sure nothing is growing. In the meantime, I'm feeling good and thank-you so much to everyone who wished me (wishes!) me well! I really appreciate it ❤️

Love,
Kristina (&Mark)

Lloyd Can't Read

Almost three weeks ago I was working on some jewelry when I had a long, vivid memory of a dream. Maybe 45 min. later I recalled a different, equally vivid and intense dream. By the 4th or 5th dream recall I realized something was wrong. I wasn't "remembering dreams," I was creating them.

Naturally, this would happen on a Saturday. On the plus side, Mark was home. It became much worse once I realized what was happening and sort of panicked (ie 10+ an hour). I wrote my doctors on Sunday and, to his everlasting glory, my Dr. R wrote me back. On a Sunday.

Two weeks of calm-down-brain drugs fixed my fake dreams. This last event has left me with (among other things): occasional flickering words on places where there are none, a vastly reduced ability to read, and a very wavering ability to write. Just the other night we were watching a show and I was using a device on our TV to look up an actor. I pointed to 'Bamab' on the screen and said "Does that spell 'Jeremy'?" We both had to just laugh.

After reporting my reduced state to Dr. R he set me up for an EEG at Hopkins. I go tomorrow. This should show what is happening in my unhappy head and how best to treat it with medicine. I'm on the highest doses of my current medications, so clearly we need to find something new.

I am thrilled to be under the care of smart, supportive doctors who respond to my needs. I am blessed to be surrounded by people who love me. I feel confident that this can be fixed. And I'm going to post this newsletter right after the love of my life checks my spelling for me- lol!

Love, 
Kristina (&Mark)

I struggled through this great comic book yesterday